Feeding Tube Fix?

KU psychologist tackles the transition from tube to oral feeding in kids with special needs Dr. Ann Davis isn’t patting herself on the back just yet, but the codirector of the Center for Children’s Healthy Lifestyles & Nutrition is pretty sure she and her team are on to something. The feeding tubes clinical trial she’s leading has been successful with every patient treated so

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Feeding Tube Diaries: A Lee’s Summit family’s struggles … and ultimate triumph

By Sarah Wyssmann Our oldest daughter Elizabeth, who is now seven and-a-half, was born premature, weighing 1 pound, 11 ounces. Though she was born with many health challenges, one of the biggest battles we faced early on was her severe reflux, GI pain and, of course, eating problems. Initially, Elizabeth was able to get the NG (nasal feeding) tube out before coming home from

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Nutrition for the New Year

New program helps kids with special needs stay healthy and fit By Kara Cowie Kristen Oakley has always loved her daughter Tatum’s chubby cheeks. So when doctors expressed concern over the 8-year-old’s weight and recommended an intervention, Kristen was surprised and a little hesitant. “We had always considered Tatum as a cute, little roly-poly kid,” says Kristen, who lives on Fort Leavenworth with her

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Be the Best Grandparent to a Child with Special Needs

Finding out you are going to be a grandparent, whether for the first or eighth time, is a cause for celebration. The bond that can form between grandparent and grandchild is a special gift that not everyone gets to experience. Learning that your grandchild has a special need shouldn’t change this, whether you find out before birth or when the child is a bit

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The Sibling Factor: Adding to the Family (Or Not)

Deciding to have another child can be a tough call, especially for parents already caring for one child (or perhaps multiple children) with special needs. Some parents adopt a more-the-merrier attitude and welcome siblings into the mix, while others feel their hands are full enough as it is. Regardless of what your family has chosen, Parenting Children with Special Needs wanted to explore the

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Grief Resources for those Suffering the Loss of a Child

Alexandra’s House Perinatal Hospice House and Infant Refuge Providing active management and hope for families pregnant with or who have a baby with lethal anomalies and who is expected to die near or shortly after birth. • AlexandrasHouse.com • 816-931-2539 Carousel Pediatric Hospice and Palliative Care and Perinatal Program Providing specialized care at home for infants, children and adolescents with serious illnesses or for

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States of Grief for Parents of Children with Special Needs

By Kristin Reinsberg, MS, LMFT Daily tasks, demands and challenges continually test a parent’s patience, problem solving skills and flexibility. Time to recharge and relax is often in short supply as the responsibilities of parenthood pull for more of our energy. Stress can impact our health and can greatly affect our relationships with partners, friends and, most importantly, our children. If you are a

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The Sister Shield

Demetri Fotopoulos always under the protection of his big sis Eleni By Melina Bland Eleni Fotopoulos is a proud big sister. At four-and-a-half years old, she takes her role very seriously. All the kids in her pre-kindergarten class at the Child Development Center at the Jewish Community Center know Eleni’s little brother Demetri. He often totes along on trips to drop her off and

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Finding Friends for Your Special Needs Child

Kids want to have friends. But it’s not so easy for special needs children to find meaningful friendships with others. Some children are shunned because of physical differences. Others have social and communication deficits that make it difficult to start and keep friendships. While it is impossible to address the nuances of every disability, here are some general tips toward finding friends for your

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